PART 1Genomic Medicine and Informatics
The use of genetic information in health care presents many challenges, one of which is the
protection of patient privacy. Given enough genetic information, a precise identification of a
person can be made. Read the Health Informatics: A Systems Perspective Chapter 9 case
study on page 201 and address the following:
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Explain if you agree with the perspective of Sandy or Grace? Articulate the reasons why.
Compare and contrast the differences between the case of Henrietta Lacks, Jean and the
Havasupai?
Explain how genomic databases can be used to accomplish meaningful research while
protecting patient privacy.
Identify two US genomic institutes that focus on genomic medicine.
o Compare and contrast their mission and vision.
o Compare and contrast their major focus areas of research.
o Did the site indicate if patient samples will be sequenced and the data combined with
each participant’s medical record to allow researchers and research partners to
investigate new approaches to disease prevention, diagnosis and treatment?
o If asked to consent to your genomic information being used in research, explain if
you would consent or decline? Include your rationale for consenting or declining.
Your Paper:
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Must be two to four, double-spaced pages in length, excluding the title and reference
pages, and formatted according to APA style as outlined in the Writing Center.
Must Include a title page with the following:
o Title of paper
o Student’s name
o Course name and number
o Instructor’s name
o Date submitted
Must begin with an introductory paragraph that has a succinct thesis statement.
Must include a minimum of three references, (excluding the textbook), on a separate
reference page, formatted according to APA style
PART 2
Consumer Health/PHR Knowledge Management
In the healthcare field the acquisition of knowledge is important to improve patient care.
The process of identifying, managing, and sharing this information is called knowledge
management. For this assignment, read the Health Informatics: A Systems Perspective,
Chapter 8 Case Study on page 184, and analyze how telehealth and personal health records
may increase the quality of healthcare in the community. In your paper:
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Describe challenges in ensuring continuity of care for patients with chronic conditions.
How can emerging technologies solve or at least ease these challenges?
List and explain some of the benefits of integrating a PHR with a health social network
for patients with chronic conditions, their caregivers, and the organization.
Name the specific effects that adopting e-health and social media applications will have
on the structure and strategies of a healthcare organization
How might the adoption of an integrated PHR and health social network change the
interaction and relationship between patients and health professionals?
Your Paper:
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Must be a minimum of two to three, double-spaced pages in length, excluding the title
and reference pages, and formatted according to APA style as outlined in the Writing
Center.
Include a title page with the following:
o Title of paper
o Student’s name
o Course name and number
o Instructor’s name
o Date submitted
Begin with an introductory paragraph that has a succinct thesis statement.
Address the topic of the paper with critical thought.
Use at least three scholarly sources (excluding the textbook)